kimmy marie's CVS Story
KIMMY MARIE'S CVS STORY
My Story- It all started about 6 and a half years ago. I don't remember exactly the first time that it happened, but I do remember that I felt like I couldn't stop throwing up. Back then it would only happen a few times a day and wouldn't last more than a day. When I would go up to the hospital after about a year of this happening (it only would happen maybe 4-5 times a year for the first two years) and nobody could explain what it was. They ran test after test, prescribed me zofran and gave me fluids.
Sometimes they would say it was the stomach flu, but I've had the stomach flu before and it didn't feel like it was that, but nobody really cared. About three years into this horror the vomiting came more frequently and I was diagnosed with severe anxiety which we all at the time thought was the cause of this. BUT almost everybody except for my best friend's family thought I was doing it to myself. When I was living with my family after so long of this happening they started to think I was doing it to myself--making myself vomit which obviously was not the case. My doctors didn't know what was wrong with me and this one doctor I had even told my mother that she thought that I was an 'unknown bulimic'. During high school I missed a lot of school just because I was so sick that I couldn't stop unless I was connected to IV's and being treated that way. I almost couldn't graduate due to the amount of school that I missed, but still it was my own fault because even with doctors notes which I almost always had, I still missed over the limit (24) so I had to stay extra days after all the other seniors were done and I had to make up the hours missed. For years I've suffered with this and when I would go up to the ER all the doctors and nurses would act like it was in my head. My ex boyfriend, family, friends, fiance, nurses, doctors all said it was in my head. Nobody at this point believed me until this last time I went to the ER. I was physically exhausted, emotionally exhausted, I felt so weak that I couldn't even walk to the bathroom without the help of someone. It went on for 4 whole days after hours of throwing up and going in and out of the ER those four days for a doctor there who I've had in the past from being there look a little deeper and FINALLY diagnose me with CVS. I couldn't believe it. I finally had a name to this illness and I was relieved to have a doctor believe me after so long of being told I was crazy & that I was doing it to myself. After I got better I went onto Tumblr and searched up the hashtag "cyclic vomiting syndrome" and saw three blogs right away talking about it. I messaged them and we began to share our stories of living with this and what it's done to us. All three of their stories were almost exactly like what I went through. One of the girls said she was in so much pain that when she went to the ER she was tricked into thinking she was getting some sort of pain medication, but they actually gave her water in an IV to see if she was lying because they didn't believe her. It broke my heart because I know EXACTLY how that feels. I suffered for years until a month ago when I was diagnosed. I couldn't be more thankful for that doctor who diagnosed me and I can't wait to begin figuring out a treatment plan with medications & counseling next month. All I know is that I WILL get past this.
This illness CANNOT define who I am. So keep staying strong! ❤
My Story- It all started about 6 and a half years ago. I don't remember exactly the first time that it happened, but I do remember that I felt like I couldn't stop throwing up. Back then it would only happen a few times a day and wouldn't last more than a day. When I would go up to the hospital after about a year of this happening (it only would happen maybe 4-5 times a year for the first two years) and nobody could explain what it was. They ran test after test, prescribed me zofran and gave me fluids.
Sometimes they would say it was the stomach flu, but I've had the stomach flu before and it didn't feel like it was that, but nobody really cared. About three years into this horror the vomiting came more frequently and I was diagnosed with severe anxiety which we all at the time thought was the cause of this. BUT almost everybody except for my best friend's family thought I was doing it to myself. When I was living with my family after so long of this happening they started to think I was doing it to myself--making myself vomit which obviously was not the case. My doctors didn't know what was wrong with me and this one doctor I had even told my mother that she thought that I was an 'unknown bulimic'. During high school I missed a lot of school just because I was so sick that I couldn't stop unless I was connected to IV's and being treated that way. I almost couldn't graduate due to the amount of school that I missed, but still it was my own fault because even with doctors notes which I almost always had, I still missed over the limit (24) so I had to stay extra days after all the other seniors were done and I had to make up the hours missed. For years I've suffered with this and when I would go up to the ER all the doctors and nurses would act like it was in my head. My ex boyfriend, family, friends, fiance, nurses, doctors all said it was in my head. Nobody at this point believed me until this last time I went to the ER. I was physically exhausted, emotionally exhausted, I felt so weak that I couldn't even walk to the bathroom without the help of someone. It went on for 4 whole days after hours of throwing up and going in and out of the ER those four days for a doctor there who I've had in the past from being there look a little deeper and FINALLY diagnose me with CVS. I couldn't believe it. I finally had a name to this illness and I was relieved to have a doctor believe me after so long of being told I was crazy & that I was doing it to myself. After I got better I went onto Tumblr and searched up the hashtag "cyclic vomiting syndrome" and saw three blogs right away talking about it. I messaged them and we began to share our stories of living with this and what it's done to us. All three of their stories were almost exactly like what I went through. One of the girls said she was in so much pain that when she went to the ER she was tricked into thinking she was getting some sort of pain medication, but they actually gave her water in an IV to see if she was lying because they didn't believe her. It broke my heart because I know EXACTLY how that feels. I suffered for years until a month ago when I was diagnosed. I couldn't be more thankful for that doctor who diagnosed me and I can't wait to begin figuring out a treatment plan with medications & counseling next month. All I know is that I WILL get past this.
This illness CANNOT define who I am. So keep staying strong! ❤
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