Elizabeth's CVS Story
My name is Elizabeth I am 25 years old and would like to share my story.
My CVS started at 2-3 years old from there it all begun, it didn’t stop from there I have struggled with CVS all my life! My childhood was the worst because it was ripped from me. I didn’t have a childhood because of CVS. I was too sick in and out of hospitals that I missed so much school made no friends and felt embarrassed to say I had a disability. I remember my parents feeling lost, doctors not knowing what was wrong with me & being told it’s a rare disease with no cure was the worst and not knowing what caused it was a nightmare. I puked so much my voice was scratchy and I became insecure about myself. Felt depressed because I felt alone like nobody understood me that even though this illness looks invisible is real! And it wasn’t just in my head! I been over 10 hospitals and been hospitalized thousands of times! I hated food when I was sick the smell made me want to puke more I just wanted something to drink even though I would just puke it up. The puking came every second that I was so weak. I just wanted to be a kid a teen and enjoy life without waking up the next day not knowing why I am sick and puking and having the worst stomach pain that I felt like I was lost. There was a pointe in my life where I wanted to end it because of the pain because of CVS I was tired of the puking my body was tired. At age 6 I had to get a port for my iv fluids of so much I was in the hospital. This was my life has a kid & has a teenager it didn’t stop. The worst part was when doctors don’t believe you when they think it’s in your head when they don’t understand you that you just need something for the pain and vomiting. It was hell. This is CVS for me this is what it did to me. CVS is cruel it steels your life and tries to kill you slowly. But one thing I never gave up on my god and in hope I knew I could get ahead even after everything yes I was little delayed from missing so much school and life in general but I didn’t let me stop me from believing I wanted to be a mom even though I knew I would be a high risk and there was a small chance for my child to be sick I wanted to do the things I couldn’t do has a kid and I can say now at age 25 god blessed me with a healthy baby boy & even though CVS is still there I have enjoyed life to the fullest basically just doing a bucket list & I been hospital free for couple years now. Thanks to my meds especially Ativan (Lorazepam) and promethazine. My miracle pills! Has I got older I also realized my anxiety was high and it triggered my CVS and I learned if I can keep my anxiety under control I can keep my CVS under control. Everybody is different though. But if I could tell someone else that knows what CVS feels like I would say never give up always believe in yourself believe in faith. And always go above and beyond for your desires don’t let CVS win!
My CVS started at 2-3 years old from there it all begun, it didn’t stop from there I have struggled with CVS all my life! My childhood was the worst because it was ripped from me. I didn’t have a childhood because of CVS. I was too sick in and out of hospitals that I missed so much school made no friends and felt embarrassed to say I had a disability. I remember my parents feeling lost, doctors not knowing what was wrong with me & being told it’s a rare disease with no cure was the worst and not knowing what caused it was a nightmare. I puked so much my voice was scratchy and I became insecure about myself. Felt depressed because I felt alone like nobody understood me that even though this illness looks invisible is real! And it wasn’t just in my head! I been over 10 hospitals and been hospitalized thousands of times! I hated food when I was sick the smell made me want to puke more I just wanted something to drink even though I would just puke it up. The puking came every second that I was so weak. I just wanted to be a kid a teen and enjoy life without waking up the next day not knowing why I am sick and puking and having the worst stomach pain that I felt like I was lost. There was a pointe in my life where I wanted to end it because of the pain because of CVS I was tired of the puking my body was tired. At age 6 I had to get a port for my iv fluids of so much I was in the hospital. This was my life has a kid & has a teenager it didn’t stop. The worst part was when doctors don’t believe you when they think it’s in your head when they don’t understand you that you just need something for the pain and vomiting. It was hell. This is CVS for me this is what it did to me. CVS is cruel it steels your life and tries to kill you slowly. But one thing I never gave up on my god and in hope I knew I could get ahead even after everything yes I was little delayed from missing so much school and life in general but I didn’t let me stop me from believing I wanted to be a mom even though I knew I would be a high risk and there was a small chance for my child to be sick I wanted to do the things I couldn’t do has a kid and I can say now at age 25 god blessed me with a healthy baby boy & even though CVS is still there I have enjoyed life to the fullest basically just doing a bucket list & I been hospital free for couple years now. Thanks to my meds especially Ativan (Lorazepam) and promethazine. My miracle pills! Has I got older I also realized my anxiety was high and it triggered my CVS and I learned if I can keep my anxiety under control I can keep my CVS under control. Everybody is different though. But if I could tell someone else that knows what CVS feels like I would say never give up always believe in yourself believe in faith. And always go above and beyond for your desires don’t let CVS win!
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